ODNOS KVALITETA KOMUNIKACIJE I ZADOVOLJSTVA ŽIVOTOM KOD OSOBA SA AFAZIJOM
Sažetak
Samopercepcija sopstvene komunikativne sposobnosti – posmatrane u kontekstu obezbeđivanja socijalizacije/aktivnosti, samopouzdanja u komunikaciji i ostvarivanja pojedinačnih uloga – i kvaliteta života ispitivane su prigodnim instrumentima (Skalom za merenje kvaliteta komunikativnog života - Quality of Communication Life Scale - ASHA QCL i Inventarom kvaliteta života - Quality of Life Inventory - QOLI) kod 60 osoba sa afazijom nastalom kao rezultat vaskularnog insulta, u periodu između dva i dvadeset meseci nakon moždanog udara. Ispitanici sa afazijom, su, kao grupa, pokazali srazmerno nisko vrednovanje sopstvenih komunikativnih sposobnosti bez obzira na domen ispoljavanja, kao i tip afazije. Nivo vrednovanja sopstvenog kvaliteta života se pokazao kao umereno pozitivno povezan sa doživljajem kvaliteta komunikativnog života, sugerišući da bi kvalitet komunikacije mogao biti stalna, značajna, mada ne i isključiva varijabla koja definiše kvalitet života u ovoj populaciji. Težina afazije se izdvojila kao bitan faktor samopercepcije kvaliteta komunikativnog života, ali i ukupnog zadovoljstva životom, što se nije pokazalo i za tip jezičkog poremećaja posmatran po aksiji fluentnosti.
Ključne reči: afazija, kvalitet komunikacije, kvalitet života.
Reference
Aprile, I., Piazzini, D. B., Bertolini, C., Caliandro, P., Pazzaglia, C., Tonali, P., & Padua, L. (2006). Predictive variables on disability and quality of life in stroke outpatients undergoing rehabilitation. Neurological Sciences, 27(1), 40-46. doi:10.1007/s10072-006-0563-5
Berzon, R., Hays, R. D., & Shumaker, S. A. (1993). International use, application and performance of health-related quality of life instruments. Quality of Life Research, 2(6), 367-368. doi:10.1007/bf00422214
Bose, A., McHugh, T., Schollenberger, H., & Buchanan, L. (2009). Measuring quality of life in aphasia: Results from two scales. Aphasiology, 23(7-8), 797-808. doi:10.1080/02687030802593189
Bullinger, M., Anderson, R., Cella, D., & Aaronson, N. (1993). Developing and evaluating cross-cultural instruments from minimum requirements to optimal models. Quality of Life Research, 2(6), 451-459. doi:10.1007/bf00422219
Cruice, M., Worrall, L., & Hickson, L. (2006). Quantifying aphasic people's social lives in the context of non‐aphasic peers. Aphasiology, 20(12), 1210-1225. doi:10.1080/02687030600790136
Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being. Aphasiology, 17(4), 333-353. doi:10.1080/02687030244000707
Dalemans, R. J., De Witte, L., Wade, D., & van den Heuvel, W. (2010). Social participation through the eyes of people with aphasia. International Journal of Language & Communication Disorders, 45(5), 537-550. doi:10.3109/13682820903223633
Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social Participation for Older People with Aphasia: The Impact of Communication Disability on Friendships. Topics in stroke rehabilitation, 15(4), 325-340. doi:10.1310/tsr1504-325
Diener, E., Emmons, R. A., Larsen, R. J. & Griffin S. (1985). The Satisfaction with Life Scale. Journal of Personality Assessment, 49(1), 71-75.
Diener, E., & Ryan, K. (2009). Subjective well-being: A general overview. South African Journal of Psychology, 39(4), 391-406. doi:10.1177/008124630903900402
Engell, B., Hütter, B. O., Willmes, K., & Huber, W. (2003). Quality of life in aphasia: Validation of a pictorial self-rating procedure. Aphasiology, 17(4), 383-396. doi:10.1080/02687030244000734
Fotiadou, D., Northcott, S., Chatzidaki, A., & Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?. Aphasiology, 28(11), 1281-1300. doi:10.1080/02687038.2014.928664
Franzén‐Dahlin, Å., Karlsson, M. R., Mejhert, M., & Laska, A. C. (2010). Quality of life in chronic disease: a comparison between patients with heart failure and patients with aphasia after stroke. Journal of Clinical Nursing, 19(13‐14), 1855-1860. doi:10.1111/j.1365-2702.2010.03219.x
Frisch, M. B. (1989). Quality of life therapy: An integrative model of etiology, assessment, and treatment of depression and related disorders. In World Congress of Cognitive Therapy, Oxford, UK.
Frisch, M. B. (1992). Use of the Quality of Life Inventory in Problem Assessment and Treatment Planning for Cognitive Therapy of Depression. In Comprehensive casebook of cognitive therapy (pp. 27-52). Boston, MA: Springer Nature.
Frisch, M. B. (1994). Quality of life inventory (QOLI). Journal of Consulting and Clinical Psychology, 4, 92-101.
Hilari, K. (2011). The impact of stroke: are people with aphasia different to those without?. Disability and Rehabilitation, 33(3), 211-218. doi:10.3109/09638288.2010.508829
Hilari, K., & Byng, S. (2001). Measuring Quality of Life in People with Aphasia the Stroke Specific Quality of Life Scale. International Journal of Language & Communication Disorders, 36(S1), 86-91. doi:10.3109/13682820109177864
Hilari, K., & Byng, S. (2009). Health‐related quality of life in people with severe aphasia. International Journal of Language & Communication Disorders, 44(2), 193-205. doi:10.1080/13682820802008820
Hilari, K., Byng, S., Lamping, D. L., & Smith, S. C. (2003). Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): Evaluation of Acceptability, Reliability, and Validity. Stroke, 34(8), 1944-1950. doi:10.1161/01.str.0000081987.46660.ed
Hilari, K., Cruice, M., Sorin-Peters, R., & Worrall, L. (2016). Quality of Life in Aphasia: State of the Art. Folia Phoniatrica et Logopaedica, 67(3), 114-118. doi:10.1159/000440997
Kauhanen, M. L., Korpelainen, J. T., Hiltunen, P., Määttä, R., Mononen, H., Brusin, E., ... & Myllylä, V. V. (2000). Aphasia, Depression, and Non-Verbal Cognitive Impairment in Ischaemic Stroke. Cerebrovascular Diseases, 10(6), 455-461. doi:10.1159/000016107
Kamiya, A., Kamiya, K., Tatsumi, H., Suzuki, M., & Horiguchi, S. (2015). Japanese Adaptation of the Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): Comparative Study among Different Types of Aphasia. Journal of Stroke and Cerebrovascular Diseases, 24(11), 2561-2564. doi:10.1016/j.jstrokecerebrovasdis.2015.07.00
Manders, E., Dammekens, E., Leemans, I., & Michiels, K. (2010). Evaluation of quality of life in people with aphasia using a Dutch version of the SAQOL-39. Disability and Rehabilitation, 32(3), 173-182. doi:10.3109/09638280903071867
Murphy, J., Tester, S., Hubbard, G., Downs, M., & MacDonald, C. (2005). Enabling frail older people with a communication difficulty to express their views: the use of Talking Matstm as an interview tool. Health and Social Care in the Community, 13(2), 95-107. doi:10.1111/j.1365-2524.2005.00528.x
Northcott, S., & Hilari, K. (2011). Why do people lose their friends after a stroke?. International Journal of Language & Communication Disorders, 46(5), 524-534.
Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21(1), 98-123. doi:10.1111/j.1460-6984.2011.00079.x
Paul, D. R., Frattali, C. M., Holland, A. L., Thompson, C. K., Caperton, C. J., & Slater, S. C. (2004). The American speech-language-hearing association quality of communication life scale (QCL): Manual. Rockville, MD: American Speech-Language-Hearing Association.
Rose, M., Ferguson, A., Power, E., Togher, L., & Worrall, L. (2014). Aphasia rehabilitation in Australia: Current practices, challenges and future directions. International Journal of Speech-Language Pathology, 16(2), 169-180. doi:10.3109/17549507.2013.794474
Ross, K., & Wertz, R. (2003). Quality of life with and without aphasia. Aphasiology, 17(4), 355-364. doi:10.1080/02687030244000716
Simmons-Mackie, N., Threats, T. T., & Kagan, A. (2005). Outcome assessment in aphasia: a survey. Journal of Communication Disorders, 38(1), 1-27. doi:10.1016/j.jcomdis.2004.03.007
Sinanović, O., Mrkonjić, Z., & Zečić, S. (2012). Quality of life and post-stroke aphasic syndromes. Periodicum biologorum, 114(3), 435-440.
Sneeuw, K. C. A., Aaronson, N. K., de Haan, R. J., & Limburg, M. (1997). Assessing quality of life after stroke: the value and limitations of proxy ratings. Stroke, 28(8), 1541-1549. doi:10.1161/01.STR.28.8.1541
Spaccavento, S., Craca, A., Del Prete, M., Falcone, R., Colucci, A., Di Palma, A., & Loverre, A. (2014). Quality of life measurement and outcome in aphasia. Neuropsychiatric Disease and Treatment, 10, 27-37. doi:10.2147/ndt.s52357
Sukur, Ž., & Vuković, M. (2017). Poređenje zadovoljstva životom kod osoba sa nefluentnim i fluentnim afazijama. U VIII Međunarodna naučno-stručna konferencija „Unapređenje kvalitete života djece i mladih“, 23-25.06.2017. godine, Aranđelovac, Srbija.
Verna, A., Davidson, B., & Rose, T. (2009). Speech-language pathology services for people with aphasia: A survey of current practice in Australia. International Journal of Speech-Language Pathology, 11(3), 191-205. doi:10.1080/17549500902726059
Vuković, M. (2011). Afaziologija. Beograd: Univerzitet u Beogradu, Fakultet za specijalnu edukaciju i rehabilitaciju. Treće dopunjeno izdanje.
Vuković, M. (2015). Tretman afazija. Beograd: Univerzitet u Beogradu, Fakultet za specijalnu edukaciju i rehabilitaciju. Drugo dopunjeno izdanje.
Vuković, M. (2016). Afaziologija. Beograd: Univerzitet u Beogradu, Fakultet za specijalnu edukaciju i rehabilitaciju. Četvrto dopunjeno izdanje.
Vuković, M. (2018). Communication Related Quality of Life in Patients with Different Types of Aphasia Following a Stroke: Preliminary Insights. International Archives of Communication Disorder, 1(003). doi:10.23937/iacod-2017/1710004
WHOQoL Group. (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine, 41(10), 1403-1409. doi:10.1016/0277-9536(95)00112-k
Worrall, L., & Holland, A. (2003). Quality of life in aphasia. Aphasiology, 17(4), 329-332. doi:10.1080/02687030244000699