SAMOKRIVICA KOD RODITELJA DECE SA POREMEĆAJEM IZ SPEKTRA AUTIZMA I MOTORIČKIM POREMEĆAJIMA: ULOGA DETETOVOG PROBLEMATIČNOG PONAŠANJA I CRTA LIČNOSTI
Sažetak
Uprkos prethodnim nalazima koji su pokazali negativan efekat samokrivice na blagostanje, malo se zna o prisustvu samokrivice kod roditelja dece sa razvojnom ometenošću. Stoga, cilj ove studije bio je ispitati samokrivicu na uzorku roditelja dece sa poremećajem iz spektra autizma i motoričkim poremećajima iz Srbije. Dodatno, želeli smo istražiti efekat detetovog problematičnog ponašanja, crta ličnosti, opažene i doživljene stigme i sociodemografskih karakteristika na roditeljsku samokrivicu. Prigodan uzorak je uključio 82 roditelja iz nekoliko većih gradova. Za potrebe ove studije konstruisali smo Skalu roditeljske samokrivice koja se sastoji od sedam stavki. Generalno, roditelji su izvestili niži stepen samokrivice, mada je 22% imalo umeren i visok stepen samokrivice. Dalje, nije dobijena razlika u stepenu samokrivice u odnosu na dijagnozu deteta. Potom, pokazano je da sa porastom dečijih emocionalnih simptoma i opadanjem saradljivosti roditelji više sebe okrivljuju. Sociodemografske karakteristike, opažena i doživljena stigma nisu imale efekat na samokrivicu. Naši rezultati ukazuju da kliničari treba da uzmu u obzir različitost roditeljskih iskustava i stepen samokrivice prilikom razvijanja programa podrške, i da se Skala roditeljske samokrivice može koristiti u identifikovanju ranjivih roditelja. Dodatno, podrška treba biti usmerena i na dete kako bi mu se pomoglo da ublaži emocionalne probleme i posledično pomoći celoj porodici.
Reference
Bradley, R. H., & Corwyn, R. F. (2019). Agreeable mothers: How they manage adverse circumstances and difficult children. Journal of Research in Personality, 79, 109-118. doi: 10.1016/j.jrp.2019.03.002
Čolić, M. (2016). Stavovi dece tipičnog razvoja prema vršnjacima sa razvojnom ometenošću. U I. Milačić-Vidojević, N. Dragojević, & M. Čolić (Ur.), Ometenost i mentalna bolest: stavovi, stigma, diskriminacija. (str. 249-325). Beograd: Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju
Čolić, M., Dababnah, S., Garbarino, N., & Betz, G. (2019). Parental experiences raising children with autism spectrum disorder in Eastern Europe: a scoping review. International Journal of Developmental Disabilities, 1-13. doi: 10.1080/20473869.2019.1688931
Corrigan, P. W., & Watson, A. C. (2002a). The paradox of self‐stigma and mental illness. Clinical Psychology: Science and Practice, 9(1), 35-53. doi: 10.1093/clipsy.9.1.35
Corrigan, P. W., & Watson, A. C. (2002b). Understanding the impact of stigma on people with mental illness. World psychiatry, 1(1), 16-20.
Eaton, K., Ohan, J. L., Stritzke, W. G. K., & Corrigan, P. W. (2016). Failing to meet the good parent ideal: Self-Stigma in parents of children with mental health disorders. Journal of Child and Family Studies, 25, 3109-3123. doi: 10.1007/s10826-016-0459-9
Eaton, K., Stritzke, W. G., Corrigan, P. W., & Ohan, J. L. (2019). Pathways to self-stigma in parents of children with a mental health disorder. Journal of Child and Family Studies, 1-13. doi:10.1007/s10826-019-01579-2. doi: 10.1007/s10826-019-01579-2
Fernandez, M. C., & Arcia, E. (2004). Disruptive behaviors and maternal responsibility: a complex portrait of stigma, self-blame, and other reactions. Hispanic Journal of Behavioral Sciences, 26, 356-372. doi: 10.1177/0739986304267208
Ferriter, M., Huband, N., & Ferriter, N. (2003). Experiences of parents with a son or daughter suffering from schizophrenia. Journal of Psychiatric and Mental Health Nursing, 10(5), 552-560. doi: 10.1046/j.1365-2850.2003.00624.x
Findler, L., Jacoby, A. K., & Gabis, L. (2016). Subjective happiness among mothers of children with disabilities: The role of stress, attachment, guilt and social support. Research in Developmental Disabilities, 55, 44-54. doi: 10.1016/j.ridd.2016.03.006
Francis, A. (2012). Stigma in an era of medicalization and anxious parenting: how proximity and culpability shape middle-class parents’ experiences of disgrace. Sociology of Health & Illness, 34(6), 927-942. doi: 10.1111/j.1467-9566.2011.01445.x
Goodman, A., & Goodman, R. (2009). Strengths and difficulties questionnaire as a dimensional measure of child mental health. Journal of the American Academy of Child & Adolescent Psychiatry, 48(4), 400-403. doi: 10.1097/CHI.0b013e3181985068
Goodman, R. (1997). The strengths and difficulties questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581-586. doi: 10.1111/j.1469-7610.1997.tb01545.x
Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24 (6), 734-749. doi: doi.org/10.1111/1467-9566.00316
Gunthert, K. C., Cohen, L. H., & Armeli, S. (1999). The role of neuroticism in daily stress and coping. Journal of Personality and Social Psychology, 77(5), 1087-1100.
Hair, J. F., Black, W. C., Babin, B. J., Anderson, R. E., & Tatham, R. L. (2006). Multivariate data analysis (Vol. 6). Harlow, England: Pearson Education Limited.
Hartley, S. L., Schaidle, E. M., & Burnson, C. F. (2013). Parental attributions for the behavior problems of children and adolescents with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 34(9), 651-660. doi: 10.1097/01.DBP.0000437725.39459.a0
Hooker, K., Frazier, I. D., & Monahan, D. J. (1994). Personality and coping among caregivers of spouses with dementia. The Gerontologist, 34, 386-392. doi: doi.org/10.1093/geront/34.3.386
Huang, Y. P., Kellett, U. M., & St John, W. (2010). Cerebral palsy: Experiences of mothers after learning their child’s diagnosis. Journal of Advanced Nursing, 66(6), 1213-1221. doi: 10.1111/j.1365-2648.2010.05270.x
John, O. P., & Srivastava, S. (1999). The Big-Five trait taxonomy: History, measurement, and theoretical perspectives. In L. A. Pervin & O. P. John (Eds.), Handbook of personality: Theory and research (Vol. 2, pp. 102-138). New York, NY: Guilford Press.
Kaufman, G. (1996). The psychology of shame (2nd ed.). New York, NY: Springer Publications.
Kersten, P., Czuba, K., McPherson, K., Dudley, M., Elder, H., Tauroa, R., & Vandal, A. (2016). A systematic review of evidence for the psychometric properties of the Strengths and Difficulties Questionnaire. International Journal of Behavioral Development, 40(1), 64-75. doi: 10.1177/0165025415570647
Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46, 942-953. doi: 10.1007/s10803-015-2637-9
Krstić, T., Mihić, I., Rajić, M., & Branković, J. (2017). Podrška roditeljima dece sa smetnjama u razvoju i hroničnim bolestima. Novi Sad: Filozofski fakultet.
Kuhn, J. C., & Carter, A. S. (2006). Maternal self‐efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564-575. doi: 10.1037/0002-9432.76.4.564
Lee‐Baggley, D., Preece, M., & DeLongis, A. (2005). Coping with interpersonal stress: Role of Big Five traits. Journal of Personality, 73(5), 1141-1180. doi: 10.1111/j.1467-6494.2005.00345.x
Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science & Medicine, 70, 2045-2051. doi: 10.1016/j.socscimed.2010.02.023
Moses, T. (2010). Exploring parents’ self-blame in relation to adolescent’s mental disorders. Family Relations: An Interdisciplinary Journal of Applied Family Studies, 59(2), 103-120. doi: 10.1111/j.1741-3729.2010.00589.x
Nixon (1993). Reducing self-blame and guilt in parents of children with severe disabilities. In G. H. S. Singer & L. E. Powers (Eds.), Families, disability, and empowerment: Active coping skills and strategies for family interventions (pp. 175-201). Baltimore, MD: Paul H. Brookes Publishing Co.
Pandey, S., & Elliott, W. (2010). Suppressor variables in social work research: Ways to identify in multiple regression models. Journal of the Society for Social Work and Research, 1(1), 28-40. doi: 10.5243/jsswr.2010.2
Pejovic-Milovancevic, M., Stankovic, M., Mitkovic-Voncina, M., Rudic, N., Grujicic, R., Herrera, A. S., ... & Daniels, A. (2018). Perceptions on support, challenges and needs among parents of children with autism: the Serbian experience. Psychiatria Danubina, 30(Suppl 6), 354-364.
Popadić, D., & Biro, M. (1999). Autostereotipi i heterostereotipi Srba u Srbiji. Nova Srpska Politička Misao, 6(1-2), 89-109.
Shaver, K. G., & Drown, D. (1986). On causality, responsibility, and self-blame: A theoretical note. Journal of Personality and Social Psychology, 50(4), 697-702. doi: 10.1037/0022-3514.50.4.697
Republički zavod za statistiku (2019). Visoko obrazovanje 2018/2019. Preuzeto sa: https://publikacije.stat.gov.rs/G2019/Pdf/G20196011.pdf
Uba, C. D., & Nwoga, K. A. (2016). Understanding stigma from a sociocultural context: mothers’ experience of stigma directed towards children with special educational needs. International Journal of Inclusive Education, 20(9), 975-994. doi: 10.1080/13603116.2016.1145259
Watson, D., Clark, L. A., & Harkness, A. R. (1994). Structures of personality and their relevance to psychopathology. Journal of Abnormal Psychology, 103(1), 18-31.
Whittingham, K., Sofronoff, K., Sheffield, J., & Sanders, M. R. (2008). An exploration of parental attributions within the autism spectrum disorders population. Behaviour Change, 25(4), 201-214. doi: 10.1375/bech.25.4.201